Challenges of Living with a Rare Diseases

Focusing within the coordination between medical, social and support services in order to handle the challenges that people living with a rare disease and their families around the world confront each day. Even if rare disease patients and their families face many challenges, enormous progress is being made every day. Most rare diseases have no cure, so living with a rare infection is an on-going learning experience for patients and families. Day-by-day, hand-in-hand, together we present a united voice to advocate for the treatments, care, resources and services we all need. Managing these care-related tasks alongside their usual daily activities such as work, school and leisure time can be challenging.

 

  • Patient attrition
  • Diagnosis
  • Developing and using orphan medicinal products
  • Access the treatment

Related Conference of Challenges of Living with a Rare Diseases

June 09-10, 2020

10th European Epidemiology and Public Health Congress

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July 22-23, 2020

10th World Congress on Rare Diseases and Orphan Drugs

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August 19-20, 2020

European Summit on HIV, STD and STIs

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September 28-29, 2020

13th Global Infections Conference

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October 5-6, 2020

12th Euro-Global Conference on Infectious Diseases

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November 05-06, 2020

9th Asia Pacific STD and Infectious Diseases Congress

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February 15-16, 2021

8th International Congress on Infectious Diseases

London, UK
February 22-23, 2021

4th Global Experts Meeting on Infectious Diseases

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