Biography
Biography: David Rose
Abstract
David’s presentation will cover two main areas: Firstly, the science behind what Occipital Horn Syndrome is, covering prevalence and inheritance. Secondly, David will cover how his poor health has affected his work life, education, relationships with friends and family and his aims for the future. David will speak openly about the condition and the uncertainties that come with it, especially in the stage of his life now. David will also speak about how being born with this ultra-rare condition and always being in and out of hospital has made him the man he is today and how he appreciates the life he has – despite always being different to most of his peers.