World Congress on

Rare Diseases

Theme: Fighting Rare Diseases with Innovative Techniques

OCM for World Rare Diseases Series Conferences

Organizing Committee

OCM Member

Masoabi Sefojane

Chair
South African Haemophilia Foundation Youth Council
South Africa

Biography Research Interest

OCM Member

Abdul Matin

Associate Professor
Majmaah University
Saudi Arabia

Biography Research Interest

OCM Member

Samer Ellahham, MD, CPHQ, EFQM, FACMQ, FACP, FACC, FAHA, FCCP

Regional Chair, Middle East
Patient Safety Movement Foundation
United Arab Emirates

Biography Research Interest

OCM Member

Nadia Bodkin

Senior Executive Vice President
Rare Advocacy Movement
Greater New York City Area

Biography Research Interest

OCM Member

Stef Stienstra

Professor
Dutch Armed Forces / Royal Dutch Navy
Netherlands

Biography Research Interest

OCM Member

Scott Schliebner

Senior Vice President
Center for Rare Disease, Precision Medicine, and Advanced Therapeutics
USA

Biography Research Interest

OCM Member

Hafiz Muhammad Mazhar Asjad

Associate Professor
Forman Christian College University
Pakistan

Biography Research Interest

OCM Member

Mohammed Zahran

Public Health Specialist
Ministry of Health & Prevention
United Arab Emirates

Biography Research Interest

OCM Member

Mohamed Zakareya Ahmed El-helf

Professor
Egyptian Ministry of Health
Egypt

Biography Research Interest

Organizing Committee - Rare Diseases 2017

OCM Member

Romina Ortiz


Rare Genomics Institute
USA

Biography Research Interest

OCM Member

Harsha Rajasimha


Organization for Rare Diseases India
USA

Biography Research Interest

OCM Member

Amrik Sahota


Rutgers University
USA

Biography Research Interest

OCM Member

Jacques Tremblay


Laval University
Canada

Biography Research Interest

Organizing Committee - Rare Diseases 2016

OCM Member

Daniel Cohen

Chairman
Pharnext
France

Biography Research Interest

OCM Member

Serge BRAUN

Scientific Director
AFMTelethon
France

Biography Research Interest

OCM Member

Stephen P. Arneric

Executive Director
Critical Path Institute
USA

Biography Research Interest

OCM Member

Stephen B. Shrewsbury

Executive VP, Development & CMO
Fortuna Fix
USA

Biography Research Interest

OCM Member

Amrik Sahota

Professor
Rutgers University
USA

Biography Research Interest

OCM Member

Pat Furlong

Founding President and Chief Executive Officer
Parent Project Muscular Dystrophy
USA

Biography Research Interest

OCM Member

Annemieke Aartsma-Rus

Professor
Leiden University Medical Center
The Netherlands

Biography Research Interest

Organizing Committee - Infectious Diseases 2016

OCM Member

Thomas D Licker

Director of Infection Control Technologies
American Bio Recovery Association
USA

Biography Research Interest

OCM Member

Francis J Castellino

Director of the WM Keck Center for Transgene Research
University of Notre Dame
USA

Biography Research Interest

OCM Member

Stef Stienstra

Strategic Functional Specialist Health and Environment
Dutch Armed Forces / Royal Dutch Navy
Netherlands

Biography Research Interest

OCM Member

Rachel Groppo

Virology Manager
Sanofi Pasteur
USA

Biography Research Interest

OCM Member

Eugénie Bergogne-Bérézin

Professor
Centre Hospitalo-Universitaire Bichat- Claude Bernard University Diderot
France

Biography Research Interest

OCM Member

Fernanda De Freitas Anibal

Professor
Universidade Federal de São Carlos (UFSCar)
Brazil

Biography Research Interest

OCM Member

Joanna Zajkowska

Researcher
Medical University of Białystok
Poland

Biography Research Interest

OCM Member

Ashok Kapse

Head of the Pediatric Department
Mahavir Super Specialty Hospital
India

Biography Research Interest

OCM Member

Stephen Mortlock X

Global Infectious Diseases and Microbiology Liaison
Quest Diagnostics
UK

Biography Research Interest

OCM Member

Junie Lia Monica

Head of Microbiology Department
"Iuliu Hatieganu" University of Medicine and Pharmacy
Romania

Biography Research Interest

OCM Member

Maria Luisa G Daroy

Professor
St. Luke’s Medical Center
Philippines

Biography Research Interest

OCM Member

Maria Del Rosario Dávalos Gamboa

Director
University of San Simón
Bolivia

Biography Research Interest

Organizing Committee - Infectious Diseases 2015

OCM Member

M Khalid Ijaz

Researcher
RB, Montvale, NJ 07645, USA
USA

Biography Research Interest

OCM Member

Irina Magdalena Dumitru

Director of Research Department
Ovidius University Constanta, Romania
Romania

Biography Research Interest

OCM Member

Stef Stienstra

Director
Dutch Armed Forces / Royal Dutch Navy
Netherlands

Biography Research Interest

OCM Member

Amr Ismail

Professor
Cairo University, Egypt
Saudi Arabia

Biography Research Interest

OCM Member

Ashok Kapse

Professor and Head of the pediatric department
Mahavir super specialty hospital, Surat, Gujarat
India

Biography Research Interest