2nd World Congress on

Rare Diseases

Theme: Hope: The Best Therapy for Rare Diseases

OCM for World Rare Diseases Series Conferences

Organizing Committee

OCM Member

Bukkie Ojoawo

Co-founder
Apex Clinical Research Organization
USA

Biography Research Interest

OCM Member

Cesare Spadoni

Co-founder & Chief Operating Officer
Oncoheroes Biosciences Inc
UK

Biography Research Interest

Organizing Committee - World Rare Diseases 2018

OCM Member

Masoabi Sefojane

Chair
South African Haemophilia Foundation Youth Council
South Africa

Biography Research Interest

OCM Member

Abdul Matin

Associate Professor
Majmaah University
Saudi Arabia

Biography Research Interest

OCM Member

Samer Ellahham, MD, CPHQ, EFQM, FACMQ, FACP, FACC, FAHA, FCCP

Regional Chair, Middle East
Patient Safety Movement Foundation
United Arab Emirates

Biography Research Interest

OCM Member

Nadia Bodkin

Senior Executive Vice President
Rare Advocacy Movement
Greater New York City Area

Biography Research Interest

OCM Member

Stef Stienstra

Professor
Dutch Armed Forces / Royal Dutch Navy
Netherlands

Biography Research Interest

OCM Member

Scott Schliebner

Senior Vice President
Center for Rare Disease, Precision Medicine, and Advanced Therapeutics
USA

Biography Research Interest

OCM Member

Hafiz Muhammad Mazhar Asjad

Associate Professor
Forman Christian College University
Pakistan

Biography Research Interest

OCM Member

Mohammed Zahran

Public Health Specialist
Ministry of Health & Prevention
United Arab Emirates

Biography Research Interest

Organizing Committee - Rare Diseases Congress-2018

OCM Member

Tiziana Greggi

Head
Rizzoli Orthopaedic Institute
Italy

Biography Research Interest

OCM Member

Laxminarayan Bhat

President & CEO
Reviva Pharmaceuticals
USA

Biography Research Interest

OCM Member

Dr. med. Bernhard R. Ruf

Head
St. Georg Hospital
Germany

Biography Research Interest

OCM Member

Stef Stienstra

Dutch Armed Forces
Royal Dutch Navy
The Netherlands

Biography Research Interest

OCM Member

Reza Nassiri

Assistant Dean
Michigan State University
USA

Biography Research Interest

Organizing Committee - Rare Diseases 2018

OCM Member

Alba Ancochea

CEO
Spanish Federation of Rare Diseases and its Foundation
Spain

Biography Research Interest

OCM Member

Alastair Kent


Genetic Alliance UK
UK

Biography Research Interest

OCM Member

Don Van Dyke


Cloud Pharmaceuticals
USA

Biography Research Interest

OCM Member

Michael S. Wolfe


University of Kansas
USA

Biography Research Interest

OCM Member

Krupa Torne


Surya Children's Hospital
India

Biography Research Interest

Organizing Committee - Rare Diseases 2017

OCM Member

Romina Ortiz


Rare Genomics Institute
USA

Biography Research Interest

OCM Member

Harsha Rajasimha


Organization for Rare Diseases India
USA

Biography Research Interest

OCM Member

Amrik Sahota


Rutgers University
USA

Biography Research Interest

OCM Member

Jacques Tremblay


Laval University
Canada

Biography Research Interest