Senior Executive Vice President
Rare Advocacy Movement
Greater New York City Area
She currently holds the positions of Senior Executive Vice President of MaxifyLife, Corporate Engagement Manager of the Jansen’s Foundation, Global Gene’s Foundation Alliance Council Member and Founding Board Member of Rare is Not Rare. Recently, Nadia has also facilitated and coordinated the development of the Rare Advocacy Movement (RAM), a patient advocacy initiative focused on documenting the ever-evolving complex structure and unique dynamics of the rare disease patient advocacy landscape.