Jennifer Mcnary
Rare Diseases Advocate, USA
Biography
Jenn McNary was the former Director of outreach and advocacy at a Massachusetts based non-profit foundation, where she was responsible for the organization of the largest FDA advisory committee hearing in history. She has unique experience in the drug development field, an advocate engaging with the regulators and as a Consultant helping to develop programing for patients. She is currently consulting in the biotechnology space with an expertise in caregiver/patient engagement, including bringing the patient voice to drug development and solving barriers to access.
Abstract
Abstract : Ensuring patient centricity in rare disease drug development