Youmna Ghaziri
Patient Advocate, UAE
Biography
Youmna Ghaziri is a published blogger, philanthropist, public speaker, an agriculture engineer from the American university of Beirut, wife and a proud mom of Lynn and Lara. Youmna’s blogging journey started in 2016 after her elder daughter Lynn was diagnosed with a rare disease called Erythromelalgia. Since then, Youmna adopted the mission of spreading awareness around her daughter’s rare disease to help others get a diagnosis and hopefully find a cure someday. Her focus is on a community and digital campaign to create awareness in addition to supporting other moms and families dealing with rare diseases and how to positively overcome the daily challenges associated with them.