Living with Rare Diseases

Over 30 million people are affected by over 6000 different rare diseases, which have all been recognised to far. Due to their complexity, uncommon diseases have few treatment options and few treatments available. Living with a rare disease is a continual learning process for patients and families because many rare diseases have no known cure. Rare diseases, which are frequently chronic, life-threatening, and disabling, have significant negative effects on the entire family. Even though the disease names and symptoms may vary, rare diseases have a significant impact on patients' and families' daily lives.

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